Tag: rare disease

Alicia Jackson lost custody of twins

My Twins Were Taken Away from Me at Just 5 Weeks Old After I Brought Them to the ER

Victoria Pasten-Morales

7-Year-Old Has Both Feet & Hand Amputated After Contracting Mysterious Disease

JT Borforka

Doctors Told Parents Son Had 2 to 5 Years To Live & He Just Celebrated His Fifth Birthday

Indi mitochondrial disease

Judge — Not Parents — Will Get To Decide Whether Terminally Ill Baby Stays on Life Support

Rabbit Fever

My Daughter Survived Deadly ‘Rabbit Fever’ — Here’s What You Need To Know

mother and daughter

‘Power of Moms’: This Mom Quit Her Job To Find a Cure for Her Daughter’s Rare Disease

Hallie Hale

FL Teen’s Loss of Fine Motor Skills & Hallucinations Lead to Diagnosis of Rare Disease

Family Travels the World

Parents of Kids With Rare Disease Take Them on World Vacation Before They Lose Their Sight